The speciality of paediatric palliative care has a reputation and recognition for the positive outcomes that this approach to care can deliver to patients and their families.1, 2 From its outset, paediatric palliative care has shared the same philosophy of care as the adult specialty (e.g., interdisciplinary care, maximising supports at home and collaborative practice), while also developing its own distinctive model. For example, more than half the patients supported by a paediatric palliative care service will have non-cancer LLCs that are not seen as often in adult practice. Paediatric palliative care services will typically remain consultative and collaborate closely with other healthcare teams involved in the child’s care.3 The types of diseases encountered, the symptoms experienced and how children understand and communicate about their illnesses differ in each case. These differences must be acknowledged and inform the care provided. Throughout this guide, there are references to ‘child’; this is generally inclusive of the age range served by this speciality, covering from an antenatal diagnosis (foetus/ baby) to neonate, infant, child and adolescent or young adult (18 years).